medication

Just a quick note to ask everyone who is reading this to say a quick prayer. As most of you know, for the past two years now, my disease has completely responded to the chemo. And I only had to take a tiny maintenance dose, a small fraction of what I used to have to take. But it has some major skin side effects which are very uncomfortable. To cut down on this, I've had to stay on large doses of steroids.
So, on my last trip to Houston a few weeks ago, they told me about a new medication that they think will work much better and has no skin side effects. The problem is that the drug is FDA approved, but not on the market yet. For this reason, the only way I can get the medication is to convince GlaxoSmithKlein (the drug company) to give it to me. The crazy thing is that 3 years ago, when this drug was being developed, the drug company contacted me and asked me to be in an educational video about my disease. This disease is very rare and often misdiagnosed (it was for me for 5 years). And even with this disease there are three kinds. One is an allergy, one is a leukemia, and the third is somewhere between those. And I had the rarest of the three, the luekemia form.
The doctors are pleading my case with the drug company and they are supposed to return a decision to me this week. So, please pray that they would be motivated to give me the medication . Thank you all so much.

P.S. I find the video hilarious, because they made me be so serious. At the time they filmed it, the doctors weren't giving me much hope. God is amazing, in case you don't know that. So if you want to watch it yourself, someone posted it on YouTube. I'm not sure of the exact address, and youtube is blocked on the server at work, but if you google "YouTube Hypereosinophilic Syndrome" it is the video that comes up. I hope you find as much humor in the video as I do.